Ty had chemo today, it was short and sweet! We went up to the local hospital, hooked him up to the game cube, took blood, got Vincristine, and done! I don't know his ANC though because they didn't have that number yet when we left and didn't get a call from clinic on what his ANC was and if we need to stay on current dose of chemo or what. *Sigh* I guess the distance care coordinator got a job at a different hospital and they are in the transition phase of getting someone else to handle getting orders sent out and stuff. After several phone calls to clinic yesterday I guess they finally got the orders in to our local doc so Ty could get his vincristine today. I'll probably have to make a few more calls on Monday to find out his ANC and chemo dosage. I can't complain, cause he is doing so so well but it does sort of make you feel like you are falling through the cracks. We are thinking from now on we will just go back to doing all of his appointments down at PCMC, that way at least we know in advance what time his appointment is and what his counts and chemo dosages are before we leave the hospital. Waiting for a call from clinic that never comes is getting old. Oh! crap, I just noticed I missed a call from Ty's local doc at like 6:30...stink!!! We really really like his local doc. I could probably just guess what his dosage would be if only I knew his ANC.
Okay! Done complaining now! Other counts: WBC 2.5, RBC 3.74, HGB 10.7, HCT 33, PLTS 211. Height 105cm and weight 42.6 lbs.
I am still super duper annoyed that PMC won't let me have a copy of his counts anymore. If anybody knows the person who wrote that rule have them give me a call cause I want an explanation!
ummm now I'm really done complaining
Ty also had a routine eye doctor appointment today, he did awesome! Not only could he identify the letters, he could even see the teeny tiny ones. So so thankful that there are no signs of cognitive delay from his treatment so far, no sign of drop foot, no sign of neuropathy, just have so much to be thankful for!! Sometimes I wonder if having him in a tumbling class is helping him avoid drop foot, anybody know? None of those things seem connected, but they all are pretty common side effects of the types of chemo he takes. And we have a great eye doctor!
He has a pretty good cold right now, coughing up a storm and his temperature keeps threatening to go up and his little sis has had a temp of 103 on and off all week! Ty's temp only got into the 100's so we didn't have to take him in *yet*. He actually likes going in so he was bummed that it never got high enough to go.
And one last pic I took just for fun when he was doing his homework the other day, the little pictures he was drawing were so cute! Thanks for checking in! We are super thankful that we don't have anything else to report!! Happily blogging about boring stuff!!
*Update* I just listened to the message from his local doc...ANC is 700 so I'm going to just continue his dosage unless I hear otherwise.
Thankful that his local doc called!
