Our visit to Primary Children's today was pretty uneventful, in fact they were so fast with everything that I pretty much had to drag Ty out of there. He was a little impatient at first cause his awesome game finding dad didn't get to come this time so it took us a few minutes to get his gaming arranged. It was good to be fast and get out of there cause the last thing we want to do is spread any lingering RSV germs to any of his cancer buddies...we were careful to keep to ourselves.
Counts today: I'll put the normal range of each in parentheses. WBC 3.2 (5.5-15.5), RBC 3.61 (3.90-5.30), HGB 11.2 (11.5-13.5), HCT 34.1 (34.0-40), PLTS 390 (150-400), ANC 1200 (1500-8500) So his ANC is close to 1000 which is where they want it to be. His oral chemo is what keeps it there, and it causes the other numbers to be a little low sometimes too, but as long as he's on the right dose they don't get too low. It looks like for now he is on the right dose. Now if we can just keep the germs at bay and stay out of the hospital!! Bring on the hand sanitizer!!
On the way home we made a pit stop at a gas station and I let him pick out some candy. When we got back in the car he said as he ate his candy..."I'm okay with being sick....cause I get whatever I want when we go to the hospital" Then he giggled. CHIPS...cancer has it's privileges. :)
Saturday, January 19, 2013
Update...we just saw the doc and we are good to go! Yay!
Friday, January 18, 2013
Tys feels pretty good, he even started playing with his bed controls last night and shooting nurses with his nerf guns.
Thursday, January 17, 2013
Ty started fevering again last night so we took him up to peds at the hospital so the doc on call could take a look at him. The good news is his ANC is 2000, the bad news is his oxygen was at 77 when they hooked him up last night and it was taking a liter of oxygen to get him up over 90. He tested positive for RSV which explains the oxygen problem. He is not a fan of the oxygen tubies in his nose and has been pretty quiet since we got here.
Thursday, January 10, 2013
We took Ty to see his pediatrician today for a CBC and to get a general checkup. He's been especially pale & tired lately, always wanting snuggles and having an extra hard time any time he doesn't get his way. It's kind of like he's still on steroids even though he's not. His doctor was very thorough, I love how he listens to everything I say and takes it all seriously. He said Ty probably does feel crummy even though he's on such a low dose of chemo and he thinks we are doing a good job with him and not babying him. It was nice to hear some reassurance from a professional not only that he looks fantastic, no signs of relapse, his liver looks good etc, but also that we are doing okay with him emotionally and discipline-wise. Sometimes I wonder if this experience is making him a little too pampered and spoiled. Then I remember what it feels like to be ill and nautious and we do snuggles as often as we can to help him feel better. He's been on chemo since he was 3 and I wonder if he even knows what it feels like to feel all the way well, or is able to recognize those feelings. He refuses to tell me when he doesn't feel good, but I can tell when he doesn't feel good cause he wants to sit on my lap and hold my hair (my hair is kind of like a security blanket for him). It's hard to decipher just how he is feeling cause one minute he is running around playing and having fun and eating like any other kid, the next he is gagging on his food and spitting it back out or begging for snuggles. He's a little trooper, I wish I could crawl inside his head and see what it's really like.
His ANC is a little low, which is surprising but everything else looked good. His sister has had flu-like symptoms all week with a high fever (it was 104.9 last night) even though we all got flu shots. So our house smells like a swimming pool cause we are trying to keep the flu germs isolated to just her. She seems to be doing a little better today. We are hoping we can skate through this one without it spreading. Keeping our fingers crossed...and sanitized.
CBC results: WBC 2.6, RBC 3.55, HGB 10.8, HCT 35.5, PLT 280, ANC 600. Everything a little low except platelets, but not low enough to worry about too much.
Still praying for Millie and the other cancer fighters who aren't doing as well as Ty. We are super thankful to Justin Bieber who was late to his own concert in SLC so he could visit Millie. She really needed that little uplift as she fights Ty's type of cancer for the 3rd time. Never underestimate the power of a bunch of moms of kids with cancer when they set their mind to something! We witnessed that at the CureSearch SLC walk as well. I sure love the Utah Moms with Cancer Fighting Cuties!
Thanks for checking in!
Jan 14 2013
I'm just going to add to this post since it was just another doc appt and CBC. Ty fevered today so we went to the Children's Clinic for a CBC, blood cultures, and he was tested to see if he had the flu and got 2 owey Rocephin shots in his legs. He's been hobbling around ever since. We were at the doc for a couple of hours and then went straight to Walmart for 4 pokie prizes. One for the blood draw, one for the flu test (heinous thing stuck way up his nose), and two for the shots. He says he likes pokies now cause he likes poky prizes..except for leg pokies. I've heard Rocephin shots hurt a lot. Remember way back in May of 2011 when he used like 20 boxes of Phineas and Ferb bandaids nursing his pokies? Yep those were Rocephin shots. He has changed so much since then! His ANC is still 600 so he didn't have to be admitted to the hospital. Yahoo!!! 600 is kind of low but not low enough to be considered neutropenic. For my records: WBC 1.9, RBC 3.77, HGB 11.5, HCT 38.7, PLT 296.
Tuesday, January 1, 2013
Our house still looks like a Christmas bomb went off in it so this morning we told the kids that when we got the house clean we could go sledding...Tyson is still on steroids so he spent most of the morning begging for snuggles. For him snuggles means he sits on my lap on the couch and we watch TV. He requires snuggles at least once a day, most of the time he asks for them multiple times a day, and when he's on steroids snuggling all day long would be preferable. He always looks a tad zombie-ish when he is on steroids, I'm not sure if the picture captures the look or not..
One of the reasons we thought it was kind of funny that they told us to call if he turns yellow was cause he always has a pale yellowish hue when he is on steroids...we also made several jokes on the way home about casually giving them a ring if our son's liver started to fail...I'm sure you had to be there to think it was funny, cause it's not funny, but that's why it was funny...and you make dumb jokes to keep the worry from making you crazy...cause it's crazy to worry so much, especially when the doc isn't worried that much...so you try not to worry but you do anyway, and so...crazy.
He lasted until about 8:45 tonight and then asked me to put him to bed...so this is what he was doing when 2013 began. 1 year 8 months of treatment down, 1 year 7 months to go!!! He is officially over halfway done!! Happy New Year!!