We are so excited for the CureSearch walk this weekend! Today a fellow cancer mom posted a question about why we (cancer moms) are so passionate about CureSearch. She is discouraged about how much research costs and wonders how much our little contribution is really going to help the big picture. I thought about her questions and wondered if other people wonder the same thing so I thought I would explain why we decided to get involved with CureSearch and do the walk in Salt Lake City this Saturday.
The SLC CureSearch walk is organized by a group of Utah moms of kids with cancer. It is funded 100% by donations which means 100% of the money you donate to the walk will go to research of children's cancer. CureSearch as a whole uses over 95% of their funds on Childhood Cancer research. They fund the Children's Oncology Group who Tyson is currently doing a clinical trial for.
I'm sure if you read this blog that you have heard me go on and on about the lack of funding and attention that childhood cancers get, they are so rare that researching new medicines for them is not profitable, and that is a problem for our little fighters.
Personally my number one reason for participating in the walk is to honor the strength and courage of these young fighters, to walk with other families and friends who go through similar things, and to remember the fighters who have already left this world.
Number two reason of course is to help raise awareness of what these kids go through.
Number three reason to do our teeny tiny part in helping move the research forward. 40 years ago Tyson's chance of surviving Leukemia would have been 10%. We are so thankful that there were researchers, doctors, kids and parents willing to work to find better treatment for kids even though the research takes years and years and the kids then didn't receive much benefit from the research at the time. I hope the research they are doing now will improve the chances and the treatments for kids in the future and I am thankful I get to be a little part.
I am so thankful for the people who have joined our team, donated to our team, and are coming to walk with us. It really means a lot to us that you are part of our battalion!! Thank You!! I don't want to put pressure on anybody who doesn't feel like you can or should donate or walk, that is totally understandable!! If you read this blog and pray for Tyson you are still part of his battalion and we appreciate your care so much! The shirts for the walk should be here tomorrow, I'll post a pic of them when they come. Let me know if you want one.
Oh! I guess I should also say that Tyson is doing AWESOME, loving preschool and tumbling, enjoying his new room and having a great time playing outside with neighbor friends. He goes in next Tuesday for his next treatment and gets his new port that day. Yikes!
No comments:
Post a Comment