Tyson's Brave Battalion

Tyson's Brave Battalion
Things don't go wrong and break your heart so you can become bitter and give up. They happen to break you down and build you up so you can be all that you were intended to be.” ~Samuel Johnson

Tuesday, November 13, 2012


Ty is having fun with the snow, he built a snowman all by himself the other day...
One good thing about not growing much..he gets to wear the same snowsuit he had last year.
 His week of steroids went pretty well this time.  I was worried about preschool but he seemed to do fine and still enjoyed it.  He didn't want to go to tumbling on Halloween and when we got there he was pretty upset that he was in a costume (it was a costume party).  Steroids seem to enhance every emotion and it also makes him very particular about the way things need to be or should be.  If they aren't that way it is upsetting and hard to process and handle.  They also make him feel kind of crummy.  I convinced him to go with the promise of a silly string prize when he was done and once he was out there he had a lot of fun.   He had a great time at the neighborhood trunk-or-treat at the park, and we even trick-or-treated at a few houses after.  His methotrexate rash (around his mouth) completely cleared up, that must have something to do with steroids cause he still had his pill that week, but the rash didn't come. 
 See no rash!  His eyes always look more sunken when he is on steroids.... and now that he's not on his steroids, sure enough a day after he took his methotrexate pill his rash started to come back...
 It doesn't bother him though so I guess if that's going to be his side effect from his methotrexate pill we'll take it.  It is waaaaay better than most other chemo side effects.  It took me a few tries to get a good shot of his rash...

We did a CBC yesterday to see where his counts are since they doubled his 6mp pill dose a couple of weeks ago.  He was a little nervous about his port again, but he did great.  Didn't feel a thing again so hopefully each time he will be less and less nervous about it.  Of course it helped that his home health nurse is awesome.  He's done so well lately that we haven't seen her in a while.  His counts looked great, his ANC is back down close to where it should be so things are looking good. Hopefully it will stay that way, he stays on same doses for now.
We'll do another CBC next week just to make sure he's good to hang with family for Thanksgiving.
 Counts: WBC 3.5, HGB 11.9, HCT 36, PLTS 353, ANC 1400 
Thanks for checking in, good news is boring, but we are having so much fun being boring!

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