Merin was also happy that his appointment was here. So if all works out with insurance we will probably keep doing them here which means a trip to PCMC every 3 months instead of every month. Tyson was thrilled of course, he doesn't care where we go as long as there are video games involved. (At home we only play video games on Saturday)
Jessie Rees Foundation...NEGU Tyson says Thank you! to the very kind, thoughtful, awesome people who sent this to him!
At his last appointment his ANC was higher than they want it. (ANC is an indicator of his immune system's ability to fight infection) They like to keep his immune system suppressed but not so much that he is in the danger zone for getting infections that his body can't fight off. They upped his dose of oral 6mp a little bit, from 4 half pills a week to 5 half pills a week. I was really curious to see what his ANC would be at this appointment and sure enough it is 500. Right at the cutoff point of being in the danger zone. They took him off of his oral chemo (6mp and MTX) for 2 weeks and then we will get a CBC to see if his counts are high enough to start back up again. They didn't weigh him or check his height, so I guess we will find that stuff out in Dec at his PCMC appointment. WBC 1.6, RBC 3.3, HGB 9.6, HCT 30.5, PLTS 182. They wouldn't let me have a copy of his lab report this time which I thought was really weird...As the parent of the child being treated shouldn't I have access to all of what is going on with him? It would be nice to have a chit-chat with the people who make hospital rules and pick their brain one of these days.
Last Saturday we traveled down to SLC for the CureSearch walk. Thank you SO MUCH everybody who donated to the walk this year! We had a smaller team at the walk, which was understandable since it was General Conference weekend, but our team made more money for CureSearch than last year! So THANK YOU THANK YOU!!!! I posted a whole bunch of pics on facebook from the walk so I'll just share a couple here.