Tyson's Brave Battalion

Tyson's Brave Battalion
Things don't go wrong and break your heart so you can become bitter and give up. They happen to break you down and build you up so you can be all that you were intended to be.” ~Samuel Johnson

Wednesday, April 2, 2014

Spring Break, Beehive Bears Carving, One more down!!!

A little spring break fun..flying kites 
 Ty using his favorite mode of transportation up to clinic...no not the elevator...dad's shoulders
 Craft time!  Making a fierce one eyed monster...the bandaids are holding the numbing cream on...sort of, it was leaking out the edges all over the place so we took off his shirt
 Still growing!  107.5cm and 20.4 kg (almost 45lbs)
 His onc mentioned to Tyson today that he didn't always love coming there...he doesn't believe her, to him cancer means eating otter pops, playing video games, and getting pokie prizes.  Not to mention Camp Hobe and Make-A-Wish.  Thank goodness he doesn't remember much about those first few days!!  So thankful he is doing so well...that little fear creeps up once in a while of him relapsing at some point but he has a good chance of that not happening so we try not to be scared and just be thankful.  We are heartbroken for another cancer friend Taleah who just relapsed after being off treatment for 3 months.  Same kind of cancer Tyson has. She is in for a very tough fight and her family needs lots of prayers.
 Still doing awesome!!  ANC 900, WBC 2.7, RBC 3.98, HGB 11.5, HCT 34.1, PLTS 245.  His little sis had fifths disease a couple of weeks ago.  We were a little worried that Ty was going to get it from her but it looks like he sailed through that one.  His onc suspects she actually may have gotten it from Ty because last month he wasn't feeling the greatest and his hemoglobin was low.  It can cause severe anemia in immune compromised kids but if Ty had it he escaped any problems from it thank goodness.  Little sis's rash was pretty awesome though...
She didn't have any other noticeable symptoms, so no biggie, just a cool rash...and I guess once the rash shows up you aren't contagious anymore which seems backward...
A very cool guy showed up at our house the other day, a bear praying for Tyson!  Carved by our very talented friend at Beehive Bears Carving.  You should see some of his creations
Starting his monthly 5 day steroid pulse...bring it on!!  This morning (day after treatment) Ty mentioned that he hasn't even cried yet.  Interesting how much more he is aware of what steroids do to him than he was at first.  It is helpful now that he is older that he understands a little and we can talk about how steroids means you have to work extra hard at being nice, it's not an excuse to be mean.  He got up this morning and got 'dressed' in some soft superman jammies.  We spend a lot of time snuggling on the couch when he is on steroids.  That's okay, it's nice to slow down once in a while.  Thanks for checking in! 

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