We took Ty to see his pediatrician today for a CBC and to get a general checkup. He's been especially pale & tired lately, always wanting snuggles and having an extra hard time any time he doesn't get his way. It's kind of like he's still on steroids even though he's not. His doctor was very thorough, I love how he listens to everything I say and takes it all seriously. He said Ty probably does feel crummy even though he's on such a low dose of chemo and he thinks we are doing a good job with him and not babying him. It was nice to hear some reassurance from a professional not only that he looks fantastic, no signs of relapse, his liver looks good etc, but also that we are doing okay with him emotionally and discipline-wise. Sometimes I wonder if this experience is making him a little too pampered and spoiled. Then I remember what it feels like to be ill and nautious and we do snuggles as often as we can to help him feel better. He's been on chemo since he was 3 and I wonder if he even knows what it feels like to feel all the way well, or is able to recognize those feelings. He refuses to tell me when he doesn't feel good, but I can tell when he doesn't feel good cause he wants to sit on my lap and hold my hair (my hair is kind of like a security blanket for him). It's hard to decipher just how he is feeling cause one minute he is running around playing and having fun and eating like any other kid, the next he is gagging on his food and spitting it back out or begging for snuggles. He's a little trooper, I wish I could crawl inside his head and see what it's really like.
His ANC is a little low, which is surprising but everything else looked good. His sister has had flu-like symptoms all week with a high fever (it was 104.9 last night) even though we all got flu shots. So our house smells like a swimming pool cause we are trying to keep the flu germs isolated to just her. She seems to be doing a little better today. We are hoping we can skate through this one without it spreading. Keeping our fingers crossed...and sanitized.
CBC results: WBC 2.6, RBC 3.55, HGB 10.8, HCT 35.5, PLT 280, ANC 600. Everything a little low except platelets, but not low enough to worry about too much.
Still praying for Millie and the other cancer fighters who aren't doing as well as Ty. We are super thankful to Justin Bieber who was late to his own concert in SLC so he could visit Millie. She really needed that little uplift as she fights Ty's type of cancer for the 3rd time. Never underestimate the power of a bunch of moms of kids with cancer when they set their mind to something! We witnessed that at the CureSearch SLC walk as well. I sure love the Utah Moms with Cancer Fighting Cuties!
Thanks for checking in!
Jan 14 2013
I'm just going to add to this post since it was just another doc appt and CBC. Ty fevered today so we went to the Children's Clinic for a CBC, blood cultures, and he was tested to see if he had the flu and got 2 owey Rocephin shots in his legs. He's been hobbling around ever since. We were at the doc for a couple of hours and then went straight to Walmart for 4 pokie prizes. One for the blood draw, one for the flu test (heinous thing stuck way up his nose), and two for the shots. He says he likes pokies now cause he likes poky prizes..except for leg pokies. I've heard Rocephin shots hurt a lot. Remember way back in May of 2011 when he used like 20 boxes of Phineas and Ferb bandaids nursing his pokies? Yep those were Rocephin shots. He has changed so much since then! His ANC is still 600 so he didn't have to be admitted to the hospital. Yahoo!!! 600 is kind of low but not low enough to be considered neutropenic. For my records: WBC 1.9, RBC 3.77, HGB 11.5, HCT 38.7, PLT 296.