Tyson's Brave Battalion

Tyson's Brave Battalion
Things don't go wrong and break your heart so you can become bitter and give up. They happen to break you down and build you up so you can be all that you were intended to be.” ~Samuel Johnson

Tuesday, September 27, 2011

Clinic and Ty's funny appetite

Clinic at PCMC was as normal as can be.  It was so routine that I didn't even take any pictures. We drove down, Ty got his zofran and chemos (doxorubicin and vincristine) and we drove home.  All of the meds he takes do funny things to his appetite.  He's not even on dexamethasone right now (that is a whole different set of cravings and mood swings), though he starts that tonight, and it is so weird the things he will eat and the things he won't eat.  On the way home he said he was hungry.  He didn't want anything from In n Out Burger (Brady and I went through the drive through...yummy) and he didn't want the crackers, fruit snacks, or donuts that were in the car already.  When he is nauseous but hungry it is hard for him to decide what to eat, he asks for something and then when it is right in front of him he just can't get himself to eat it.  He lost some weight this last week so we have been more attentive about trying to get him to eat stuff.  We stopped in Malad and Brady put him on his shoulders so he wouldn't touch anything at the gas station (you know, the whole germ thing).  We probably walked the little aisles for ten full minutes trying to get him to pick something out, anything.  I laughed and thought if I saw someone else doing what we were doing I would think what a spoiled kid.  Before he was diagnosed my motto was 'you get what you get and you don't throw a fit'.  It is sooooo the opposite with Ty now...more like 'you get whatever you want and try your best to get it down your gullet'.  He has been lucky cause he hasn't been throwing up, but he often says 'what's that smell'...and when I get him food he takes one look at it and says 'I was just a little bit hungry'. 
Anyway, they took him off the antibiotic even though his ANC is still only 100 because it won't do any good for a cold.  He weighed 14.5kg today so up a little from friday. His blood counts have dropped a little, but not enough to warrant any blood or platelet transfusions.  Hopefully he can just recover now for the next two weeks before he goes back in for more chemo junk.  We'll see how it goes.  Still pretty much no immune system so we are just trying to be as careful as we can even though it seems like an impossible task keeping germs away from him...especially with other sick kids right here in the same house!  We are doing our best though and shrugging our shoulders at what we can't control.  Thank you thank you thank you for the dinners, prayers, babysitting, well wishes, and donations to childhood cancer charities!  Your love and care means a lot to us.

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