Tyson's Brave Battalion

Tyson's Brave Battalion
Things don't go wrong and break your heart so you can become bitter and give up. They happen to break you down and build you up so you can be all that you were intended to be.” ~Samuel Johnson

Tuesday, October 18, 2011

Clinic today

ANC 900!  That was high enough to start his second half of delayed intensification so off we went to clinic this morning...
We left at 5:00 this morning and he slept for a while...it was still dark out when he woke up wanting a movie, the movie was so bright he had to wear sunglasses to watch it.

Ty getting his vitals done, see his smile?  He is starting to interact more with the nurses and docs.  He used to completely ignore them.  He even talked to his oncologist today!  He weighed 14.4kg today! Yay! (31.7lbs)

Brady distracting him while he gets his chemo Cytarabine.  Yep it is a little disturbing that the nurse has to put on special purple gloves and a gown to administer the poison to my 3 year old.  It is to protect the nurse of course, who is around the stuff all day, but still disturbing.

Getting ready for sedation to get his MTX back poke.  He's helping put the monitor stickers on.  He gets ketamine and versed which put him 'under' just long enough to do the procedure.  He recovers pretty quick from it and isn't as groggy and grouchy as he is when he has to go all the way under anesthesia in the rapid treatment unit.

After he woke up we went back to infusion for his other IV chemo Cytoxan.  This is the only time he has to get this one.  He also starts a daily chemo pill today called Thioguanine.  We don't know how all of this junk will affect him since everything he gets today is new to him.  I won't bore you with the complete long list of side affects, the most likely ones are nausea, vomiting, loss of appetite, hair loss, low blood counts in 1 to 3 weeks, mouth sores, flu-like symptoms, diarrhea, abnormal liver function etc etc.  So far he has done really well with all the stuff they have pumped into him so we are hoping things will be fine this time too.   

Just got home from clinic...here is Ty right now at 4:00. Going to clinic always wears him out. See his blanket? I'll take a better pic of it later, it is a very cute 'I Spy' blanket made by a family we know and love. Thank you! We played I Spy on the way home from clinic today. : ) We continue to be humbled and amazed at the love and care people continue to show for Ty and us. 

This week we finally got all the weeds pulled from the garden getting it ready for the winter, Ty found roly poly bugs

And we got to check out the new 'all access' playground our community pulled together to build for children in wheelchairs so that kids of all abilities could play together.  It is called Brooklyn's Playground named after Brooklyn who has Spina Bifida and goes to Kindergarten at our kids school.  Her parents got a committee together and raised like $400,000!  It is a fantastic playground!!

And last but not least the spaghetti that he is still eating for breakfast lunch and dinner.  This particular time we had an argument about whether or not it had enough sauce on it.  I wasn't going to budge and neither was he.  So when I left the kitchen he took matters into his own hands. : )


  1. What a great family you have! The Spaghetti sauce thing cracks me up! What a 3 year old thing to do!!! hahahaha

  2. Aloha! I hope you don't mind but my mom sent me the link to your blog. apparently we are distantly related...as in your father is my grandfather (Lynn Bjorkman) cousin. not sure what that makes us but I thought it was neat to put a face to part of my extended family that I have never met. Anyway I was touched by Tysons story and wanted you to know that we are rooting for him all the way over here in Hawaii. One of my closest friends here went through something similar with her daughter a few years ago. Watching her daughter go through chemo was heart wrenching but at the same time I was so thankful that she was able to get help and is now in remission. You and your sweet family are in our prayers. Tyson sure does have great support and I know our Heavenly Father will continue to bless and strengthen your family! ~Kirstin Latu