I know! I know! But at least this time his lips are owey because of a normal little boy thing! He tripped on the front steps at my sister's house Sunday night and fell on his lip. As you can see it hurt a lot but it is already looking a lot better, it is a big scab now.
Today was clinic day. When I told him we were going to horsey doctor he said, "yesssss, can I play Kung Fu Panda?" So here he is picking out the next game after he played kung fu panda to his hearts content. We waited for about 1 1/2 hours to go back to sedation. They had to get his medicine from the pharmacy and see if his counts were okay. On the way across the hall to the sedation suite he said, "mom, I don't feel like I need to go to sleep." : ( He always hates this part, it makes him nervous.
Today was a lumbar puncture day (chemo in the spine) which is what the sedation is for. He also got vincristine IV and today he starts his five day round of steroids. He is also on a new steady antibiotic to prevent a certain type of pnuemonia called Dapsone. He takes a pill every night. It replaces the Septra that he was on because they felt like maybe the Septra was adding to the problem of consistent low counts.
His number one buddy dad couldn't come today so we brought daddy doll instead. As soon as he was awake enough he hugged his doll and held it up so he could see dad's face.
He also played playstation as soon as he was awake enough to hold the controller. He has to stay lying down for 1/2 hour to let the spine heal to prevent headaches. And they monitor him for an hour after he is sedated.
He fell asleep holding his frosted mini wheats about 5 minutes into the ride home and slept the whole way home. Sedation makes him sleepy and woozy so I was glad he could sleep it off. Thankful today that everything went smoothly! ...and thank you for dinner...again! : ) On another note...guess who was on the news last night...click on the link to see the story...Bengal Triathlon: Competing for a Good Cause The Bengal Triathlon is on April 21st which is Ty's diagnosis day anniversary. What a great way to celebrate one year of beating cancer!!
oh oops, I forgot to post his counts, I like to have them written down somewhere. WBC 1.8, ANC 800, PLTS 65, HCT 31.1. His counts are dropping faster than I thought they would. His oncologist dropped his dose of methotrexate even lower from 6 pills to 4 pills to see if that would make a difference. My prediction remains the same, I think he will be close to or at zero within the next two weeks. I hope I'm wrong, we'll see. He weighed 16.6kg today (36.5). He is getting really close to diagnosis weight! And he is taller too! 95 cm. yay!