pokies

Recovering from one of his 'pokies' of the day with a little DS time

So after Ty woke up from surgery we pretty much had nonstop hospital yucky stuff the rest of the day.  He is at a disadvantage now that he doesn't have a port. They can't get blood to draw off of a normal IV so everytime they need a sample of blood now that means another pokie which entails him crying and writhing while I hold his whole body down and the nurse holds his arm and the IV girl draws the blood.  It is lame.  When you have a port everything goes in the port, everything comes out of the port so there are very few pokies involved.  So today he had two blood draws, a shot of neupogen, the IV in his hand taken out (they put another in his foot during surgery cause the one in his hand stopped working) involving some painful tearing off of a lot of tape wrapped around his hand.  In addition to that he has sever diahrrea now so we have had two bedding changes, about 20 diaper changes (he can't have a pullup cause of the IV in his foot), and about 20 trips IV pole and all to the bathroom. In addition to that we spent about 1 1/2 hours getting him to drink his contrast that he had to drink to get a CT scan.  It was a full cup of gatorade with the contrast mixed in and apparently the gatorade does not disguise the yuckiness of contrast cause he would drink a little bit, cry and yell that it was hurting his tongue and was yucky.  We aren't sure why his tongue is sore but he has cried about it a few other times today as well. 

 The highlight of the day was definitely getting to see Grandma and Grandpa and the kids!  They made a day trip down just to see us! 

Here's Ty holding really still for the CT scan.  He did a great job holding still while that little bed he is on went back and forth through the 'space ship'.  He was happy to get two stickers for doing so good.  He has been such a trooper today and we are both worn out.  He slept for a while after the CT scan and now thinks its time to be awake.  Here's to hoping we get more sleep than we did last night.  The CT scan did show a little fungus on his lungs, but the resident said the meds he is already on will treat it so we are at a watch and wait and see basis.  Hoping tomorrow entails less pokies and trauma.  I'm trying to help Ty cope with the whole pokie thing since he will be getting several while we are here.  Hopefully in the next few days he will get used to it and realize it isn't as scary as it seems.  It totally stinks that I have to even try to teach him that.  Right now I am hating IV poles, residents, medicine, pokies, and everything else that has to do with hospitals.  We can't wait to get out of here...too bad that aint happenin anytime soon.  He still has fever of 102, even though he's been on nonstop Tylenol all day.  Good night.  Thanks for the prayers. 
Oh, and he also had another blood transfusion today.  His labs today: WBC 0.5, RBC 2.54, HCT 22.3, HGB 7.2, PLTS 101, ANC 100.  He ended up only having one platelet transfusion last night instead of two, and I think i already mentioned that he got blood last night.