Surgery Done, Doing well

Okay, whew!! Surgery is done, that was tough watching him be rolled away with no platelets, no ANC, low red cells, and infections. I will admit I spent most of his surgery crying in the waiting room until Brady called and we talked and he distracted me from all of the crazy worries I was having.   Don't worry about the blood, that is actually from a bloody nose.  They said he was pretty mad when he woke up, pretty agitated and he was rubbing his nose.  They put some medicine in it to stop the bleeding and gave him a little more sleepy juice so he could sleep off the agitation so I am using this little window to do a quick update before he wakes up.  The port site is pretty clean and smaller than I expected, although since it was infected they can't close the wound for several weeks to a few months they said so that will entail packing the wound and dressing changes twice a day. Heinous. 

The docs finally came around on rounds and I feel so much better now that I have talked to them.  They are going to do a chest xray to see if they can find out why he is needing a little oxygen and ct scans to see if the fungal infection is hiding out anywhere in his body.  They will also do an ulstrasound of his heart to see if any of the fungus attached itself there.  I am so relieved that they are being really thorough to try to figure out why his fever was so high and why his oxygen is low sometimes.  A doc from infectious diseases came to talk too and she was very thorough.  She is starting him on another antifungal just in case, and then after they have results of the CT scan and the heart ultrasound and see what his lip is doing (which as you can see has gotten a little red again) and see how his fever is and see if the cultures grow anything else then they can determine what meds he still needs to be on and will have a better estimate of how long we will be here.  They won't even take a guess right now so we have no idea how long we will be here.  They are being super cautious because he is neutropenic and has been regularly.  He just woke up so I am off.  So far he is in a good mood!  The pain meds must be doing their job. : )  Oh, and they are giving him neupogen to boost his white cell count to see if that will help too which they don't usually give to A. L. L. Kids but in this particular case they think it is necessary.