Tyson's Brave Battalion

Tyson's Brave Battalion
Things don't go wrong and break your heart so you can become bitter and give up. They happen to break you down and build you up so you can be all that you were intended to be.” ~Samuel Johnson

Monday, June 18, 2012

Camp Hobe Day One

 Ty got to go to his day camp!  I think he had a lot of fun cause he was pretty tired when I picked him up.  We were excited to see his awesome oncologist there as one of the medical volunteers.  They have nurses and a doc there to help keep the kiddos safe since many of them are still dealing with cancer and the after effects.  When I picked up Tyson she said she tried to convince him to drink some gatorade cause he looked hot.  From the sound of it he did some rolling around on the floor trying to avoid getting a drink.  Funny boy, I don't know why he doesn't like to get drinks.
 He found some more energy when he saw the indoor pool at the hotel.  We swam for a while, then he had some Lucky Charms.  We went to dinner and he ate a chicken breast, half of Merin's broccoli, and the rest of Brooke's fettucine alfredo.  Then tonight right before he fell asleep he had a bowl of frosted miniwheats.  I haven't seen him eat that much in a long time.  He must have used a lot of energy today!  He is a little red tonight, even though I know they used a lot of sunscreen on him at camp.  It seems like you can never use enough. 
 Luckily I brought the aloe vera, he was crying after his bath that his legs hurt, they aren't too red, but they were hurting. 
 And when I picked him up from camp his hands had peeled just like a sunburn.  I'm thinking that night that his face and hands turned really red his little bike ride that day must have gotten him sunburned.  The voriconazole makes him extra sensitive to the sun...I'm guessing that is what happened...the redness on his face doesn't seem like a sunburn, but maybe it is from too much sun too? 
His face is pretty red tonight too, his skin has been so dry and his lips are peeling again of course...when are they ever not peeling?  I've been using the cream they gave us when he had that giant scab on his lip and it helps a little, at least it doesn't inflame his poor lips like chapstick does.  I've been using the cream on his red face and hands too, it seems to help.
That is probably way too many details...so I'll just say we had a lot of fun today!  Tyson didn't even mind that we were dropping him off, he said bye and off he went with his group.  We met some other cancer moms (and a couple of dads) at the park and had fun laughing about steroids and lots of other stuff.  Hopefully he can get enough sleep tonight to have enough energy for tomorrow's day camp.  We are so thankful he is well enough to go!
Mike finished his 435 miles yesterday!! We wish so much that we could have been there to cheer for him but we had some other obligations.  It was fun to see some pictures and help update his blog.www.mikesextramile.blogspot.com Thank you to everyone who followed his journey and donated to the Tenley Foundation!!  Your support helps these families so much!!

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