We made our trip to Utah a two day affair this time so we could drop Brooke and Ryan off at
Camp Hobe kids week. LOVE!!! We dropped them off in the morning and spent the rest of the day with just our littles at Hogle Zoo. (Brenna is in Vegas with some cousins)
Mom and dad liked the bird show the best...
The kids even got to feed the bird donations... But the kids liked
The carousel...
The giant metal elephant that squirts water...
and the train ride the best. Ty got lots of sunscreen that day...and lots of hand sanitizer, but other than that it was a fun, normal day. I don't think we even thought of the 'c' word very much.
I don't think Thor and Hulk usually duke it out with each other...but I haven't seen Avengers yet so what do I know? The blur in Ty's hand is a thor hammer. We stayed the night with cousins so we could go to Ty's appointment the next morning. My sister watched the girls for us...thank you!
Clinic was normalish except that Ty's doc is out of town. He got a CT first and then we headed up to clinic. They said the spots on his lungs are smaller but not gone yet...frown...so at least another month of voriconazole. darn. He also got vincristine today, which technically you aren't supposed to give when you are on voriconazole...but when you have cancer you don't follow normal rules. You do what gives them the best chance to stay alive despite the possible side effects. So the doc just said to watch for drop foot and pain in the hands and feet and stuff, she said the voriconazole might enhance the effects of the vincristine. The good thing about that is that he doesn't have to do steroids again...cause fungus likes steroids and we don't want to encourage the fungus...it is hard enough to get rid of without encouraging it. Yay for no steroids!!
Ty got a PCMC shirt when we went to the telethon, he wanted to wear it to his next horsey doctor appointment.
He did really good with his IV, he sat on my lap, and then held the helper's arm and laid his head on her arm while they poked it in. It sort of melted her heart. The IV guy had a shirt on that said "IV ninjas" Ty liked that cause he likes to 'slice' people on a regular basis. His labs are pretty good. ANC is 800, low but not in the high risk zone yet which means he gets to go to Camp Hobe next week! Yay! Emily and Ty get to do the day camp Monday and Tues and Brenna will do teen week next week. So fun! The kids talk about Camp Hobe all year...it saved our summer last year, and is saving it this year again. Real camping is out for us again this year so we are super thankful for
Camp Hobe. His other counts are in the normal range except white...WBC 3, RBC 4.45, HCT 38, PLTS 272.
Throwing coins in the ponds. Ty is feeling good, he played with cousins a little more before we drove home, fell asleep on the way home and slept until about 8:00 tonight. Now (10:00) he and Merin are running around the house giggling at each other. Dinner was waiting for us when we got home...thank you! We are spoiled!
We are still praying for
Mike (scroll down to older posts for more details) or
CLICK HERE
and if you want to know what it sounds like when Merin and Ty giggle scroll down to the
dressing change video. : ) Time to get them to bed!!
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