Warning, this post has lots of TMI in it...More of the same today, he finally pooped again this morning, very painfully as usual. His tummy hurts off and on. His bum is a little inflamed and the doc said that if it is inflamed with virtually no white cells then when he does start making white cells it might REALLY get inflamed, so much so that it might abcess they might have to drain it. He's going to analyze which antibiotic will really be best for this and change them up if need be. The doc mentioned to his students that they need to watch for typhlitis, or neutropenic enterocolitis in cancer kids. I looked it up and a lot of the symptoms match, including the sores on the tongue. It does not sound good and though it would be nice to get to the bottom of his bowel problems, I hope hope hope it is not typhlitis. ANC is zero as in zero bands, zero segs, WBC is up a tiny to .9. HCT is down a little at 28.8, Platelets are down a little 106. Really hoping he starts to feel better soon....I don't see us getting released from the hospital any time soon. Thanks for the prayers.
3:45 Ty pretty much slept until about 2:00. He woke up once in a while to have me sit by him or change the channel but mostly slept. He ate a bunch of lucky charms as soon as he woke up and then started in on the pain again. He cries for a few seconds, I ask him what is wrong and if he needs to go potty, he stops crying says no and a while later starts crying again. He pooped again, he now has diahrrea but the pain is still there so the pain isn't coming from constipation which is what I originally thought when this all started 2 weeks ago. I think the doc is not thinking it is typhlitis cause he hasn't mentioned it again. I asked him why the pain if it isn't constipation. He said he will order a test for c-diff. Ty has been in better spirits since he pooped, but still crying in pain off and on. He wants me to hold him while he goes back to sleep. sigh. I wish we had more answers