5 Hour Clinic Today

Today started a little rocky, Ty woke up at 6 and asked for a drink of water.  He promptly threw it back up at 6:30.  So needless to say we had the barf bag handy on the way to PCMC.  Ty thought it would be funner as a hat...he has not been feeling good lately and was not in a good mood today.

Pink Panther kept him occupied for the trip

Clinic was BUSY!  We sat in the waiting room for quite a while.  The Child-Life Specialist found Ty a ds since all of the tvs were being used. 

Annie the Therapy-Dog did manage to get a little smile out of him, but not much.  He was in such a bad mood that his doc asked if we had already given him his first dose of steroids.

Ty's HCT was borderline, the doc gave us a choice whether or not to give him a transfusion.  Based on how crummy he was feeling we chose transfusion.  You can see the blood in the line, that takes a long time cause they have to type the blood and then prepare the blood, then transfuse it for 2 hours, then wait for 1/2 hr to take vitals.

 And when the blood transfusion was almost done...finally...a smile!  A little pink in the cheeks and ears and ahhhhhh.  We finally left clinic at 5:00 and then left the pharmacy at 5:45.  He still feels crummy cause (warning tmi coming) he hasn't pooped in a few days.  It has been hurting really bad to poop lately, party chemo burn bum, partly constipation.  He tries really hard not to poo cause it hurts so much.  So on the way home he could no longer hold it in...I've been giving him mirilax for a few days...we quickly stopped at a gas station and  I ran him in, promptly dropped his mask on the floor ew and he screamed and cried while he pooped.  Brady watched a few ladies with raised eyebrows come out of the bathroom.  I guess that teaches us that we can never really judge cause we just don't know the whole story.  I chucked the mask and hightailed it back out of the gas station cause his ANC is still zero and he was so miserable I just wanted to get home.  I think he does feel a little better now that that is over with though.

Weight 15.9kg (35lbs).  ANC 0, WBC .6, RBC 2.92, HCT 24.1, PLTS 86, And today we start steroids...yeehaaaaa...On the bright side there was lasagna waiting for him when he got home which is the perfect steroid food : )  Thank You!!  They took him off all chemo pills for two weeks because of his low counts...yay for the break!  Then if he has recovered in two weeks they will start him back up on half doses of his chemo pills.  So for the next week we hang out at home with lots of snuggles and lots of patience : )  and we'll see what happens with his counts in a couple of weeks.  Thanks for the prayers, concern, dinners, and love for the other kiddos!  As always, you keep us going!