He is off oral chemo for a couple of weeks so I'm glad he gets a chance to recover. Because his counts dropped he will only be on half dose of chemo when he goes back on it... which means only 5 MTX pills on Thursdays instead of 10 yay!! (hopefully that will mean less mouth sores) And then 1/2 of his daily pill 6mp. I looked up the normal dosage of MTX for an adult. They take it for Rheumatoid Arthritis. Normal dosage for an adult (who weighs about 100lbs more than Ty) is 7.5mg per week, with a max of 30mg per week. When Ty was taking 10 pills he was taking 25mg. It is amazing how much their little bodies can handle. During weeks like this we have to remind ourselves that the side effects of his daily poison is worth it cause it is poisoning the Leukemia cells too...and since it isn't normal to feel so crummy on maintenance, we think things will improve and we won't have too many weeks like this in the future. We are hoping.
On a brighter note, We got Tyson's gold ribbon that hung on the ACCO Awareness Christmas tree in Washington DC. You can see the tree in the video below. A lady from our Utah Mom's group was there and was interviewed, you also see her in the video with her baby who is an AML survivor. She has dark brown hair with a red clip.I have to admit I was one of those people who knew the pink ribbon but not the gold. If nothing else, at least I know now and can help spread the word that kids get cancer too! And a giant Thank You to those of you who have helped and are helping to spread awareness. Awareness=Funding=Cure...eventually. For now we do the best we can with the poison we have. SAVE THE DATE: September 29th we will have a team and walk at the CureSearch walk in SLC. I hope you will join our team Idaho Fighters ($10 for adults, free for kids) and walk with us!! We want to be the Largest group there and raise the most money of course! Click on the link to sign up, you don't have to be there in person to join the team...but we would love to see you there! http://www.curesearchwalk.org/saltlakecity/tysonsbravebattalion