Field of Heroes this morning but it was raining when we got there. We decided to drive through Artic Circle and then see if it was still raining and try again. Ty promptly threw up as soon as the food was in the car and so we called it a day and went home. We might try to make it back over there before the Memorial Day weekend wraps up. We'll see how things go. The Voriconazole makes him throw up occasionally, I guess it is a pretty common side effect.
His port removal steri-strips finally fell off!! The line scar is the port insertion/removal site and the red dot under it is a scar from accessing the port many times. If everything goes as planned he'll have a matching scar on the other side where they put his new port in July hopefully.
Even though we went first thing in the morning so the results would be done in plenty of time for PCMC oncology to call and let us know what to do about his oral chemo and next CBC...the lab forgot to fax the results to PCMC so we waited and waited and never got a call.
Our awesome home health nurse looked them up for us and since he is still neutropenic we are assuming PCMC would have just kept him off his chemo pills anyway. Hopefully we will hear from them on Tuesday so we know where to go from here.
For my records WBC 2.0 low, HGB 11.7normal, HCT 34.3normal, PLTS 325normal, ANC 400 neutropenic.
I don't think anyone will have an answer for why his ANC is still so low, especially since he only took half dose chemo pills for 3 days. ?? We are over 9 weeks off oral chemo total out of the 17 weeks he's been on maintenance. He's supposed to take his oral chemo daily without missing a day. I hope they can solve the mystery of the low counts monster so we can get him into a more 'maintenance like' life. So far the only time we have felt like we were in maintenance was the first three weeks of maintenance. It's been a roller coaster ride of low counts, infections, and hospital visits ever since. Don't get me wrong though, we are doing great! and all of the 'downs' make the ups so much better so don't worry about us, we have so much to be thankful for!
If you missed our last post you might want to scroll down, Ty had so much fun doing a 'dressing change' on dad. He keeps asking if he can do it again. : ) He was also pleased that Brooke and Brenna both had to get pokies at their Camp Hobe physicals this week. Starting to wonder if Ty will be stable enough to go this year...here's to hoping.