I probably shouldn't finish this post while I'm still mad but this is the reality and I'm not going to try to gloss it over so we can all feel warm and fuzzy. Life was good until the Infectious disease guy came round and looked at his lip. He is concerned with how big the scab is and is not satisfied with the biopsy results they have so far. All they have back is that it was staph...duh...and he thinks it could be something else, even though the oncologists and the dermatologists think the scab is big and it is swollen as a normal healing process from a biopsy. So he won the fight, ordered a swab and had dermatology come back and do it. The lady that did it was brutal.
She got a piece of dry rough gauze and rubbed the scab off, if you look close you can see part of the incision from the biopsy and see the little stitch in it. She got her swab stick and rubbed it like the dickens a whole bunch, put that one in a vial and did two more swabs like that. And she said as she was swabbing, I don't think this is going to grow anything, this is probably just a normal progression of a lip after a biopsy.
Ugh!! IF they'd leave his lip alone and let it heal they would see that it was just a stupid staph infection. It's not herpes, it's not varicella, it's not all the weird rare funguses they are testing for, it's a stupid stupid staph infection. Okay, I feel better. I understand that they need to be thorough when a child is neutropenic but enough is enough.And just to show how resilient he is, he cried for a few minutes until the nurse brought him a fruit chiller popsicle and now he is playing lego batman on the xbox like nothing ever happened. Talking and happy and into his game. Me on the other hand...still mad.
I have no idea if they are still sending us home tomorrow or if they are going to make us wait 48 more hours for those cultures to grow. I guess we will find out tomorrow. They started him back up on acyclovir in case it is herpes even though its not. They also changed up the antibiotics he is on which I actually think was a good call but don't tell him I said that...cause I hate him right now. So he is now on acyclovir, Nafcillin, Cefepime, and still the voriconazole which is the antifungal.
We have an awesome nurse today, it is amazing how much better life is when you have a good nurse. She's been here 20 years. Her name is Kathy and oh how I wish every nurse was like her and Tracy! They both listened to me rant about the stupid lip culture and didn't defend the docs. The first day nurse we had was pretty good too but I can't remember her name...I think it was Becky, and the nurse we had the first night we were here worked really hard all night at getting his fever down and his vitals stabilized, his name was Eric, I'm really thankful for him. Nurses have a hard job....and so do little cancer patients. : (